What would you add? By the wonderful Grace Farris.
P.S. Notes to self and how to write a condolence note.
What would you add? By the wonderful Grace Farris.
P.S. Notes to self and how to write a condolence note.
Hello, your article is really good for me. I liked your writing, thank you very much for this information. Regards.
I’m in a flare right now of my chronic health issues and have been thinking about how lonely it can be. What I would love right now: a back rub, for a friend to just show up and spend a few hours with me, dropped-off food, a text or call to brighten my day, a bird feeder outside my window so I can have something to watch all day, someone to cry with. Any of those things would be so helpful right now. Never underestimate the power of simply showing up and being there with someone in their suffering, even if you can’t make it go away. It means everything to not feel alone.
I have a disability, so when we’re hosting all of the physical work falls to my husband. This weekend we invited family round for a BBQ. My dad asked if he could come early to help set up and he just got to work with no fuss. That helped me so much not to have the guilt of seeing my husband do everything alone.
My poor friend’s baby got dropped my her mother last weekend and fractured his skull, thankfully he is ok! It was such a busy weekend and I just couldn’t find a way to make a meal or get to the other side of the city where she lives to offer support, so I just ordered Door Dash Italian for the night they came home from the hospital. They probably would have been eating takeaway anyway, so I guess it was one less thing for them to think about and it took 10 minutes of my time rather than 3 hours to make and deliver something. Sometimes life is too frustratingly busy to offer the support you want to, but if people know their friends have their back, that’s the main thing.
I always recommend Emily McDowell’s empathy cards. There are a wide variety, and they walk that great line between being touching and funny, without being too cliche’d. A few examples: “There is no good card for this. I’m so sorry.” and “One more chemo down! Let’s celebrate with whatever doesn’t taste disgusting” and “I promise never to refer to your illness as a journey, unless someone takes you on a cruise.” I don’t work for them or anything, I just love their cards and other stuff.
I’m chronically ill and find that because the novelty was never there (I’ve been sick my whole life!), I rarely get these questions/offers which makes me insulate when I am sick and creates a vicious cycle. I wish more people would reach out- even outside of a flair up. All that to say, yes, reach out to your pals with acute illnesses but don’t forget about your chronically ill pals. Just because they’ve been sick forever doesn’t mean it’s easy to carry.
I loved everything that was left by the door, food, care packages, gifts for the kids.
Last year because of my treatment during covid we had to quarantine. Following a really hard day, a friend I vented to left a “movie night basket” with popcorn, chips, candy, and an Amazon gift card to rent a movie. It was perfect.
I went through cancer treatment a few years ago at 24 and it was a doozy….I lost some friendships and some of my relationships will never be the same.
There are a lot of things I could say not to do…random gifts (I didn’t need 12 adult coloring books or romance novels or inspirational quote artwork), hurtful platitudes (no, everything does not happen for a reason) or the comments about how good I looked bald. Not helpful.
A couple of things were helpful though. My mom’s best friend made me a batch of cookies to freeze and then open for each chemo cycle. Inside the package she also put a page of jokes and a funny memory we share. Another friend sent me a card every two weeks with a little drawing and a word of encouragement. Another friend would drop by with takeout from my favorite restaurant about once a month and stay and chat. More than anything it was gestures of love and quality time that stuck out. So much of being sick felt like life was marching by me while I was stuck in an awful time warp of doctors and worry and medical bills and sickness. The loved ones who stepped out of their lives to make me feel like I wasn’t so alone in my personal time warp, even for just a moment, really carried me through.
Keep trying. I have been sick for 2.5 years and relationships that I thought were incredibly strong have floated away. I have always been the person in my friendships that tried more, and when I was no longer able to be the pursuer who texted once a week(“When can we get together?” “How are you?!), I stopped speaking to a best friend and a sibling. The sad part is they barely noticed.
Even more difficult is when the friend reached after months of not speaking, she simply said she missed me. While obviously this was not spoken will ill intent, texts like this make me (and maybe other chronically ill people?) feel guilty as though the absence is all my fault. Furthermore, it adds to the layers of guilt I carry with me each day (along with my pain) for all the ways my illness has inconvenienced others and made life harder for everyone in my life. So, I guess I mean to say that while everyone’s life is busy, chronically ill people sometimes need to simply be the person who deserves to get a moment of extra attention.
(Even writing this makes me feel as though I am still putting too much pressure on others though, so I will take this back to my therapist next month )
definitely relate to this. very well expressed.
Like for traffic, so for friendships; the busses need to go in both directions. You’re not wrong in your observations and it’s not only your responsibility to maintain these relationships.
I wish you a great recovery and many many years of fun in your future
Woah, I relate to this so much. Especially that 2nd paragraph. I find that when I’m my sickest and can’t reach out first or respond, people will speak as though I’m just dropping the friendship ball. And it triggers a cycle of guilt (I find that I perpetually feel like a bad friend/ daughter/spouse/etc). Then I get upset because I’d like to just be centered when sick, for once in my adult life, without feeling like *I* should be doing anything other than trying to feel better.
My friend is thankfully not sick, but going through a pretty rough and VERY busy time. I want to make some meals for her and her family, but… her family includes a toddler (to be honest I don’t know how picky he is, but I have never cooked for any toddlers, picky or not!) and one person with morning sickness so not a great appetite.
Any suggestions would be gratefully received!!
Meatball subs and potato chips. Preferably with giant blueberry muffins for breakfast the next day.
I think a picky toddler and someone dealing with morning sickness might actually have similar tastes. Keep it simple, on the blander side, and lots of carbs. Some ideas are: homemade mac and cheese, cold pasta salad with grilled chicken, rice and bean quesadillas with guacamole. Some good side dishes would be homemade bread, a fresh salad, pre-cut fruit, or muffins. Hope this helps!
Cook for them anyway! It’ll be a relief for the parents to only have to worry about the toddler’s dinner (likely something ridiculous anyway like peanut butter and applesauce mixed together). Maybe ask the person with morning sickness if they have any food triggers to avoid, but otherwise they’ll get hungry and want to eat something simple and nourishing at some point. Think soup and fancy bread. Definitely been there! 😂
Pasta! Kids usually love pasta – even if you make bolognese or marinara sauce and send over a box of noodles to be cooked later along with some frozen garlic bread :-) As a mom of three very busy kids, the littlest being four, anytime someone blesses us with a meal is a win! Also, take out is amazing! Last year when my husband had covid, a friend dropped Chipotle on the doorstep and it was the best.
Oh wow, thank you all so much for the ideas! (I’m hungry now..!)
You’ve all been so helpful – I’m glad I will be able to lighten her load a little :)
Not sure if you’re friend has any eating restrictions–but most toddlers I know love mac and cheese (there are vegan and gluten free options available, annie’s makes a tasty one) and grilled cheese cut into fun shapes, and veggie straws and some kids really like pizza. As for someone with morning sickness–what people can tolerate really varies. I liked bread, sometimes toast, big udon noodles and lots of coconut water. You’re a good friend!
Dealing with icky morning sickness right now and bread is my favourite thing. Bread and soup would be a good bet, I think- something like muffins would also go down well :)
I have a husband and a young son, and when I was very sick I didn’t have room for anything else. The weight of everyone’s care and concern grew heavy around me. I asked my closest friends not to see me or email me for twelve months. We had all been avid email writers so this was a big thing. One of my friends did her very best but every now and then she’d send me a message with 40 images of things to make me happy – I have no idea how she found them, things like poodles in castles. Then exactly 365 days after I’d made the request there was an email from her, loving me, missing me it was glorious. She gave me the time I needed, even though it was hard for her because she loved me so much. So that’s my tip, people give you hints about what they need, listen to them. Sick people don’t come in the same shape or size. Connect in that wonderful way that only the two of you do – if you really are their friend then you know what to do, and remember, you are probably one of the biggest reasons they are trying to get better. Help them see that as far as you are concerned, they are still your friend, & they still matter.
This is a tricky one, but if you can be considerate and accommodating WITHOUT making a big show of it, that is the greatest thing! When someone is helpful, e.g. includes food that fits with dietary restrictions, or chooses a cafe that’s close to your home, etc., but then they want everyone to know how thoughtful they were and that they made/did this SPECIAL thing ESPECIALLY for you because of your illness, it can be very uncomfortable. If you can play it cool, your chronically ill friend will be doubly or triply grateful, believe me!!
Also, I find it hard when people react as though elements of my everyday ordinary experience are some kind of huge tragedy. I had a friend who I stopped seeing because she made such a big deal about how awful my illness was – I’m sure she felt that she was being really understanding and sympathetic, but I was never telling her things in a tone of drama and tragedy, and it was weird that she reacted like that. It’s not that I wanted her to pretend everything was totally fine and happy and fun, but I was working really hard to accept the reality I found myself in, and her reaction was so unhelpful with that. Definitely aknowledge that things are hard/annoying/sad etc, but take your cue from the person experiencing it to judge how to react. A simple, “That sounds really tough,” is often so much better than getting dramatically upset!
Ooof, yes this. I was diagnosed with a chronic illness a few months ago and there are certain friends I’ve avoided telling about it because in the past when I’ve gone through something hard, they tend to respond with something along the lines of “OMG, that’s awful. I don’t know what I would do if that happened to me!” The lack of self awareness is…impressive.
I’ve offered to take the medical bills and make a spreadsheet of what is owed. It can be hard sometimes to figure out what is a duplicate bill, etc. when you are the caregiver or person who is ill. It’s not the be all and end all, but it’s the first cut to organize the data for the person paying the bills.
A friend had grocery bags filled from his husband’s last months.
Oh my gosh that is BEAUTIFUL. My mom is dealing with lots of medical paperwork right now and she would likely be so happy for help like this. Thank you for the idea.
Reading this from a country where medical care is free at the point of use, it absolutely breaks my heart to think of anyone having to deal with this stuff (both the financial concerns and the arduous admin) on top of a serious illness. It must make a very hard situation so much harder. It really seems inhumane!
When I had a new diabetes diagnosis, my friends brought over a few goodies to brighten my spirits. They brought over a blanket, candle, and they had also made a batch of turkey chili and froze a few portions in flattened freezer bags to store tidily in my freezer. It was all very generous, but I was so touched by the freezer meal; they had clearly googled a diabetes “friendly” recipe and froze it so I could it eat at my convenience in the future. A huge part of chronic illnesses, and diabetes in particular, is managing stress and the thought that went behind their gift really touched me.
Our friend lost her ability to speak and text due to a brain tumour but she cld still read so we started a “mail tree” where a group of us committed to send one thing per week in the mail (funny cards, postcards, trashy magazines etc).
What a special group of friends
I hardly ever post but noticed Quiltlove in the comments and had to add that I LOVE this company!! My family has ordered two quilts. https://www.instagram.com/give_quiltlove/
Their work is beautiful and really gives the warmest “hug” to a sick friend.
I came here to see if anyone had commented about QuiltLove! I’m thinking of ordering based on today’s comments, and this is a lovely endorsement!
Thank you Kim! That means so much.
Rebekah: Please feel free to connect (liz@givequiltlove.com) if you have any questions.
Warmly,
Liz
This is largely for folks with chronic illnesses but please for all that is good and holy, think before you offer advice. As someone with a chronic illness, nothing is more frustrating than having someone ask me ‘did you try (yoga/sleep/less sleep/celery juice). Especially if the disease is chronic….it’s insulting that instead of learning what I need or how my disease works or what might actually help, folks jump right to articles sent by their great aunt or found on Facebook and that they just toss them at us instead of actively listening or supporting us. It also feels like a kick in the shins; when I tell someone I have a chronic illness and the first thing they say is ‘well have you tried yoga or going vegan or becoming a ghost’ what I hear is ‘youre clearly not doing enough or trying hard enough’
I can promise you, we’re trying…being sick is pretty much a full time job. But also chronic means…chronic. we need to live with whatever we got going on. So talk to us! Ask us what does work. Help us access and do those things. Maybe yoga does help! So come do some yoga with us! Maybe eating less sugar helps! Help us try new recipes! But don’t act like we don’t know our bodies and that we’re not putting the effort in. And also, just because we’re sick doesn’t mean we can’t eat a pint of Ben and Jerry’s or sleep in till noon or say nah screw exercise today. That doesn’t mean we aren’t trying or we don’t care or we wanna be sick…it means we’re humans and humans who will need to live with these flawed bodies for the rest of our lives and sometimes ya just need some sugar and a nap
Also, let us vent. Let us yell. Let us cry. Get mad and frustrated and pissed and sad with us…don’t try and shy away from that or tell us it’ll get better or we gotta be positive. Being sick sometimes just really really sucks and I need friends who maybe don’t get that (ya can’t unless you live it) but give me space and grace to deal with this. I’ll bounce back, I promise. I’ll find that silver lining eventually. But sometimes it’s really hard and I need to feel ok expressing that
Also bringing takeout or ice cream or weed when we’re flaring and sad always helps too…just saying
Yes!!
YES! I’m pretty sure the ‘do some research’ tip in the post is meant to be ‘educate yourself so you have some idea of what your friend is dealing with,’ but it could easily be misinterpreted as ‘learn all about the weird ideas the internet claims will cure your friend’… Even as someone with a chronic illness myself, I know it is SO tempting to make suggestions, but it’s just not welcome at all.
Every time a person asks me if I do yoga or see a chiropractor, I smile while screaming internally.
I have been having some autoimmune issues recently and had to clue my boss in since I had several doctors appointments during work hours. I don’t even have an official diagnosis yet and my boss suggested that I could possibly skip medication if I started using oil of oregano. It felt so diminishing to hear someone suggest that everything I have been going through could be cured with an essential oil or whatever that is. The kicker is she has had serious health issues the last few years and oil of oregano didn’t cure her condition so why would she suggest it would cure mine without even knowing what my diagnosis is. Ugh.
Yes to all of this. And boo to the people who are like “try vegetables. Down with big pharma!” Tell me you don’t live with chronic pain, without actually telling me you don’t live with chronic pain.
i see someone already mentioned this but i will mention this again. please be patient when your friend cancels plans, reschedules, only to cancel again. i live with a chronic illness and it is so hard to predict when i will feel good. pushing yourself when you’re not feeling well never goes well. thanks for the thoughtful post!
So true. I have ME and plans made in advance so often have to be cancelled or changed. Flexible, low-pressure, and short-notice plans are usually best for me. When an invitation from a friend specifically acknowledges that, it feels so good! Like, “I’m free in the afternoon and evening next Wednesday, but you can just let me know how you’re feeling on the day.”
Keep inviting them to things and including them in plans, but also have a conversation that asks them- do you want me to keep messaging you (you don’t have to respond to each message) or would you like me to lay off and you can text me when you can? Keep that communication open because it can change.
Also ask- do you want to talk about it or do you want to be distracted? (Check in and switch as needed)
Ask them what they need but also understand they will say they don’t need anything, so look for things you can do. I’m taking my car in to the car wash, does your car need it too? Could I water your plants or feed your pet while you’re away? Do you need a ride to the airport?
Excepting of course dietary restrictions, everyone appreciates a fresh piece of fruit, a cold dessert, or stew. Consider flowers, or picking up a book they’d like from the library. Watch a show or movie at the same time as them and do a text-a-long.
Every time you talk about it, understand that advice is useless, support is the only thing that could make them feel better, loved, more connected.
People think that kind of honesty and communication- where you ask, “deep down what do you need? What can I do, how do you like to be supported,”only happens (or doesn’t) in marriage, but a everyone needs that.
A friend once asked me, after walking in on me crying, “Do you want privacy, distraction or support?” At the moment I wanted distraction, and I really, really appreciated being given the options! I’ve borrowed this question many times since. Honestly, I think the most useful thing about it is just giving people options, and in so doing recognizing that they’re still an individual with individual needs, not just Generic Sick And/Or Unhappy Person.
My husband has been very sick for 6 months and now is hospitalized for the 4th time. One friend made a care package at the very beginning — all for me. A soft blanket for cold hospital rooms, good smelling hand lotion to help with all that dryness after endless hand washing, good lip balm. I don’t like leaving for long when he’s in the hospital so another drove 30 minutes across town to take me on a 15 minute smoothie date. I got a hug and cried, downed a smoothie, fit in a few minutes to learn what was happening in her life – (yes, I still care a lot) and rushed back in. What a friend!
Sending love to you and your husband. I’m glad you have that friend, and I hope to be like her!
One of my favorites is… “I’m heading to the grocery store by your house in an hour. Need anything (coffee, eggs, or just a pick me up… don’t be shy!)?”. It has the element of surprise while getting them something they need right then. :)
This is a good one! My sweet neighbor does this often. That and, quick, I’m at the local coffee shop. What’s your order?
Love that!
ooh i wonder if Jenny could write a column about easy-to-reheat meals that you can make? I know a lot of things should be stored separately so they don’t get mushy if you aren’t planning to eat right away, and there are so many times where delivering a cooked meal would be nice: for a sick friend, new parents, care package during covid-times. Would love some new ideas for things that would be tasty and pretty hands-free for the recipient to enjoy.
This!!
Yess! I feel like my usual go-tos are getting tired :P
As someone with a chronic illness, I feel this so hard!
A few points I would add:
1) Be as patient as you can be with last-minute cancellations, and then be even more patient. The cancellations and inconveniences are 1000x worse for the person who is sick. It sucks having to cancel *yet again* with a friend and then feeling terribly guilty on top of feeling *sick*.
2) Show that you’ve done your research when making plans and put it right in the invitation. “Join me for drinks at the Manx restaurant, 9 pm on Friday, the venue has three small steps to the entrance”. Even better if you can find a restaurant that is truly accessible (like the one recently reviewed in the New York Times: https://www.nytimes.com/2021/08/17/dining/contento-review-accessibility.html)
3) Respect your friend’s (often mixed!) feelings about their illness and their body. “I don’t think of you as someone with a disability// as someone with an illness!” is not the compliment you think it is.
Another comment that can go awry is “You look great!” While meant well, it can be viewed as somewhat insincere, so it might be best not to focus on appearances.
Take care of things for her. People have been bringing my friend meals. She leaves their tupperware on a bench on her front porch but many don’t get picked up. I try take any containers that are marked and return them to their owners who might not even realize they are waiting for them. I know my friend doesn’t want to throw the containers out for environmental reasons even though the donor might have intended that she do so.
As someone who has been there, I was shocked when a friend said to me, “You’ll let me know if you need anything.” The burden should never be on the patient whose response to such a vague offer will usually be something along the lines of “Thanks, but I can’t think of anything.” Far better is just to do something. It could be dropping off homemade soup or a stack of fun magazines or pillow spray and candles — small things to brighten one’s day are always appreciated. In my case, I’ve been the recipient of care packages sent in the mail from my adult daughter’s friends, their kindness surprised and delighted me.
When you offer to help, instead of phrasing it as “what can I do to help?” or “Can I drop off food” or whatever–try phrasing it as “I would really like to drop off food for you next week. Would [day] work?”
speaking from experience–I struggled with feeling like a burden and when a friend made it about something they wanted to do… it was a small change but it really helped me
This is terrific and as usual, Grace is spot on. At the beginning of the pandemic I launched my business, Quiltlove, which makes quilts for people facing major illnesses, like cancer, as well as happier occasions like new babies, weddings and anniversaries. My quilts are designed to be given as group gifts and feature handwritten messages and drawings from the recipient’s support network, so you can truly wrap someone in your love. I like to think of them as a card you can snuggle in :-) Thanks for letting me share this!
When my mom got her terminal diagnosis, and we decided to care for her at home for her final months, a friend of hers called me and said “I will do the laundry. Leave the dirty laundry on the porch and I will pick it up each day at 5:30 and return it at 7:30 in the morning. I won’t knock, you’ll never know I’m there, but you can rest easy knowing that this job is taken care of. And don’t worry if the laundry is “gross,” because I can handle it. I love your family and will do this for you.”
Honestly, I’m crying remembering it. She didn’t ask, she just knew what was needed and did it. FOR MONTHS! That’s love.
Wow Mary, this really touched me. What a kind and loving friend your mom had. I imagine that her initiative in making the plan (where, when, etc.) was especially helpful as it took the burden off of you as the caregiver to arrange things at a time when everything seems to require attention. Thank you for sharing!
Yes, I soaked in the unprompted, detailed kindnesses when my daughter was in and out of the hospital. Now I always try to frame it as “I’m bringing you food next week, is Tuesday or Friday better? Enchiladas sound good?” It makes it so much easier to accept.
I’m crying reading this! What a perfect way to help.
Wow, what a friend
this made me tear up!! what a gift.
I am crying just reading this! what an amazing friend.
I have been very ill for over a year now and the most helpful things have been small gestures like sending a postcard, calling for a short chat or even poppig a box of nice tea in my mailbox. There are many people who keep this up even now and it is a great comfort! Also: people asking my husband if he needs any help. The partners tend to get forgotten. As for asking what to do? It’s well ment but most days I can‘t think of anything as I’m too tired and struggling every day. It’ s very hard to then step out of yourself and analyse what would help. Also: please don’t stop calling or texting if sombody can’t answer. Many times I simply don’t have the energy for interaction. It’s not indifference. You never know how a small note on a painful day can help in giving hope! And yes to research for better understanding but a big big NO! to sharing your new informationen. A sick person spends a lot of time in hospital or with doctors and will already know anything you feel you have to share. I‘d rather hear about my friends lifes, big things and small things, so as not to feel isolated.
I know all of this is difficult for the people around me as well – but just imagine being inside… You need as much support, love and hope as you can get over probably a lifetime.
I love this, thank you.
I’d suggest asking what you can do but then also doing something even when they inevitably say “There’s nothing I can think of” or “I’ll let you know.” People who take the initiative to just show up and do something are very much appreciated in a situation where somebody is sick.
I would say , do not do research unless asked to do research. Having been on the receiving end of this kind of “help”, it is seriously unhelpful unless you are an expert in that field.
Definitely! I would say, do research to be vaguely filled in but keep it to yourself.
I wonder if we could shift it to: invite your friend to share more about what their illness is and how it affects them.
They might say no, or they might get the opportunity to share what they’re learning from their care providers (etc) and it may be a way of processing.
I respectfully disagree. I loathe schooling everyone on my condition and feel so seen when people have read up themselves. I don’t welcome medical advice but if they’re clued in, in their own time, enough to ask the right questions when needed it is so lovely to me. But yes, read up but keep your alarm, your advice and your opinions to yourself unless otherwise asked.
This one is so hard. I think it’s kind to be informed (I sometimes wonder if my family could even name my daughter’s diagnosis) but don’t turn into a webmd page. An acquaintance recently told me she googled my daughter and it was “so interesting!” and “I saw one picture of a kid that had it and it was SCARY!”
If you’re reading up to say “this surgery sounds like it’s going to be a lot of work, I’m sorry you have to go through it and I’ll be praying for you”, that’s great. Just don’t think you’re telling me anything I haven’t looked up or been told by a doctor already.
Understand that as frustrated as you are that this is unending – the cancellations, accommodations and the losses – it is four thousand times worse for the one in it. Take a breath, and be mad at the illness not the ill.
Yes – Being absent is much worse than being awkward!
love that, Liz